I was in no way rejoicing after leaving Dr S's, but I did feel a bit better. Mum and I walked down to the MRI section of the public hospital and I booked in my second MRI for April. How excitement. Then mum and I went to have lunch at the Fringe Bar. I had a salad with haloumi in it. It was yum. We also met up for a short time with my mate Dan. He told me about N's illness and suggested I contact her. Apparently what she has can sometimes be misdiagnosed as MS. N has Mixed Connective Tissue Disorder. Why do these things happen to such beautiful souls like N?
At this point, I only really had the weirdo feelings going on in my left pinky, up the side to my elbow. And even that was beginning to dull. Thank goodness.
I did my best to enjoy my time in Sydney. But there were plentiful amounts of moments of sad and water pouring from the corners of my eyes. Some of these tears were shared, but they were mostly in private with...yours truly.
January, February and March passed by. There was a visit to Europe to meet up with M in that time. That was great! But travel is exhausting. I was very tired on a daily basis.
I was also planning a bit of a 30th for myself come April when in Sydney. There was no way I was going to organise something in D-Town. I'd have about 3 people rock up!
On top of that, I had a friend's wedding to get excited about too!
These kept me occupied in D-Town. As did work, and my losing weight thing.
The wedding was in the Hunter Valley a few days before my second MRI. It was beautiful! I had such a nice time, but again, getting exhausted very quickly.
I wasn't sleeping all that well, still. I blame the worrier in me. Not the warrior.
The 4th of April arrived. Mum and I got a train up to Sydney from the Gong fairly early.
Once we arrived in the MRI waiting area, I proceeded to take out all my piercings (they really need a room for this, I think I was grossing out other people) and popped a Valium. I was such a pro this time.
The MRI was as expected but the machine, unlike D-Town's, was much newer, and apparently more powerful. But it was weird, because the dude said I could keep my jeans and bra on - I had visions of my fly and bra wires lifting me up off the bed thing and attaching to the inside of the machine! This did not occur. I had to have this cage type thing placed over my head for my brain scan - ummmm, not cool. I also had dye injected into me to help expose the active lesions. The MRI crew were really nice though. I had to hit the 'panic' button once because I needed to cough. If anyone has had an MRI, you'd understand how important it is to stay as still as possible while the machine does its stuff.
MRI all done! Now to waste a few hours until my appointment with Dr S.
Wasting, wasting, wasting.
Mum and I were again warmly greeted by Dr S.
Now all the in between bits are a bit of a blur, but basically I was told, for sure, that I had Multiple Sclerosis. It was made official.
It wasn't a shock at all. It was a bit of a relief. I now realise that some people who have MS have gone years months and years before being diagnosed. I was 'lucky'.
Now time to talk drugs! Dr S recommended to go on Rebif.
It was time now, to get my head around the idea of injecting myself 3 times a week. I was going to turn into a proper, real life, drug lover.
Upon leaving Dr S, I called the Rebif nurse, and it was organised that she drop by mum's place to show me how to use Rebif and the machine that would help me inject. Just what I wanted to do before heading to Sydney for my 30th birthday celebration. NOT!
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