Autumn Greetings! My most favourite season! Lovely crisp mornings, mild days followed by cooler nights. Love it.
This week is the final week of school for the term. I've almost made it. Quite an accomplishment. It's a challenging place to work but I am surrounded with super awesome staff that have been very supportive and helpful. I've asked a bunch of questions. I've asked the same questions over and over at times. I've made mistakes. I've been sworn at. I've cried (just once). I've met and spoke with all my students' parents/carers (most, more than once!). I've eaten lots of lollies from the lolly jar. I've written many 'to-do' lists.
My infusions have been going well. I've stopped taking Valium before them and I continue to try and drink as much water as I can (when I remember) to help with the cannula insertion, the day before. This is probably the most stressful part of the process! The most recent was not fun.
I usually have my MRI this time of year. I went through my files to try and find the letter that the hospital usually mails me, but I could not find it. I thought I put it in a 'safe place'...you know...the one that you can't remember? So I contacted the MS nurse and she investigated for me and found that I was not in the system for my yearly MRI. It appears she has forwarded a request for one, so I should receive something in the mail soon. I'll definitely be having some Valium for that fun exercise!
Another reason I had emailed the MS nurse was to ask about an unusual auditory issue I was having at the time. I was sleeping and then woke to a bizarre buzzing sensation in my head, in my brain, even. I sat up in bed, in case it was the position I had been sleeping in. However, the sensation continued and I struggled to get back to sleep.
Once I re-woke to my morning alarm, it was still there. I got up and got myself ready for work and noticed that certain high pitched or deep sounds made my face screw up like a cranky bitch. It didn't hurt - it was just unpleasant. The noise of the big fat trucks coming into Woolies (less than a km away as the crow flies) made me cringe. Putting plates away. In fact, I drove to work with no radio or music on!
I got to work and complained to my colleagues. Have a panadol - of course! I had some panadol, but it did sweet FA.
It was Thursday in about week 8, I think. That time of the term where you're past the halfway point, but the end is just too far away to get you excited, and you're just fucking exhausted (more than the usual exhaustion). My throat was hurting but I had no other symptoms. The buzzing continued throughout the day at work. I tentatively booked an appointment for after work on the Friday, to ask about this buzzing brain.
Thursday night I had a shocking sleep. S H O C K I N G. Sore throat. Buzzing. Restless. Worrying. Anxiety. All the fun stuff. I woke up and felt bloody awful. But not sick.
I could not call in sick to work, as I had a parent meeting after recess. I got my shit together and went to work.
"Are you okay?" asks a colleague. Clearly, I looked a bit shit. I spoke with my understanding colleagues (all of who know about my MS), and it was decided that I would leave after the parent meeting. I quickly arranged for this to happen and it was all good.
Went to the GP for an earlier appointment than what I had booked. The buzzing had subsided by this stage. When? I don't know. It was there in the morning and in my parent meeting! Argh. Anyway, I explained the brain buzz and she recommended I contact the MS nurse. I also asked her to check my throat. She said it just looks red and a bit sore but nothing suspicious. I took myself home and I went straight to bed. I slept for about 4 hours. Got up. Ate dinner. Chilled out with the husband, and went to bed at a normal time.
The following day I just rested and slept. It was great. By the late afternoon I felt so much better!
Exhaustion? MS? A quick virus? Who knows?!
Now...my last surgery, it did not fix my snoring. I can definitely breathe better! But the snoring is still there :(
I had a sleep study done in December and I went to the ENT last week to see the results. I did originally get a preliminary result of: NO SLEEP APNOEA. Yay! But wtf am I still snoring?
It's my anatomy. My soft palate is too soft and floppy and vibrates, hence the snoring. Some nights I do not snore. Some nights M hears me from the other room. Unfortunately we have not been sleeping the same bed for a LONG time. And this SUCKS BALLS. I mean we do, but then he moves, or I move. Or he thinks if he shakes the mattress a bit, I will stop? Haha. No darl, that just wakes me too (*whispers 'asshole'*).
Apparently dentists won't make the thing that goes in your mouth to stop your tongue from going back, unless you have sleep apnoea.
So it's a 'social issue'.
I was offered surgery. I accepted.
This means I will be getting my tonsils taken out later in the year. The ENT strongly suggested I ask anyone I know who has had theirs taken out as an adult, before committing. I got on Facie and asked and received lots of very helpful and detailed feedback (thanks to those of you who shared your nightmare stories and the good ones!). It's meant to be PAINFUL. A few had agreed it's worse than childbirth? Boy...am I in for a treat.
I need 2 weeks to recover. My plan is to take some time off from work, but also have the next school holidays off the back of that time, to ensure a solid recovery period. Plus I don't want to interrupt my students and I will have reporting to do too!
Whoa. That was a long post.
Thank you all for reading :)
Sunday, 8 April 2018
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