Again, it has been a little while since my previous post.
So what's been going on?
MS Awareness Month and Day has passed. I raised $170 via the Kiss Goodbye to MS campaign online. Thanks to anyone who donated. The money does not go directly to me, but to stuff for research and all that. Good stuff. And welcome, any new readers who clicked on the link I posted on my Kiss Goodbye to MS profile.
Thyroid news: Well, I am continuing to take the thyroxine, same dose, each morning. Got my 'bloods' done (this seems to be what people say, so I thought I'd give it a crack) and yes some of the results came back normal, but I had another thyroid antibody test done. I have Hashimoto's Disease. Google it. Basically my thyroid is getting attacked by my own body, so it is another auto-immune disorder to add onto the list! It means I may go through periods of experiencing hypER and hypO thyroid symptoms, before the disease settles into hypothyroidism. Joy.
Anyways, let me go back to Mad Sascha.
In my last post I mentioned the numbing weirdo sensations I was experiencing on my left upper front thigh. I guess this can be classified as a relapse due to these stupido weirdo feelings lasting more than 24 hours. Is it over? No. Boo. I can't really say that I am in the middle of a relapse. In fact, I can't give you any indication of where along the space of time I am with this relapse because it's still going on. Unfortunately it has slowly become worse over time. I am still walking which is super, but it crawled down my leg. That bastard.
If I were more of a maths geek I could probably give you a rate of speed as to how fast/slow these sensations moved along. But I have better things to do with my time.
It is V annoying (that's 'very' annoying for you baby boomers and above). It's painful, yet numb. Hey? That sounds ridiculous doesn't it? How can I explain further...If I touch my own thigh (as I try to do sometimes wishfully thinking by massaging it, all feeling will return) it is not painful. But if M touches it (mind out of that gutter please) or I lean on something unconsciously or I smash into the school desks (which I did, which left a massive ever changing coloured bruise), I feel pain. Enough pain to give out a little 'yelp', groan or "fuck!". It makes me angry.
Now I would like to address the 'numb' part. Clothing, most of us like wearing it. Some of us like it tight. Some like it loose. Some like a variation. I put clothes on my bottom half (skirts/shorts yadda yadda). It can be 'painful' doing this because...um I don't know why...because the material rubs quickly along my skin? (Yeah, righto Sascha). Anyways, once the items are on, I can't feel them on my left thigh. I almost get panic attacks thinking that maybe my clothes keep breaking in the same spot and exposing my naked thigh! I look down and no, I am still covered. Basically, when clothed, I feel naked on my left thigh. And when I sleep! If I am on my stomach, it feels like I am missing my left upper thigh. I can see it in my head. There's just this mysterious gap between my torso and the top of my left knee. WEIRD! Sorry, 'weird' is being way overused in this post.
My mobility has been fine, generally speaking. However, I have temporarily gone back to my granny days of holding onto the handrail when climbing up or going down stairs. More so going down stairs actually. There is a little party that goes on when my feet realise they have reached the ground. It makes me a little bit sad. I used to be ace at running down stairs. It was definitely one physical skill I mastered, especially living in a 3 story home for most of my teen life.
I have a lot of things and stuff that I want to write, but some is really boring.
I have a school production happening next week, which is really going to test me. Perhaps I will write a post once it is over. I hope this week flies by
No comments:
Post a Comment